Getting Ready for Biopsy
As I sit here and listen to Kelly singing her heart out with her headphones on to Alvin and the Chipmunks, I can’t help but have a mom moment. Little does she know that her biopsy has been scheduled for this Tuesday, her spinal fluid is clear of any cells, but we were expecting that. I received the call late yesterday afternoon and all I can say is that it put a huge pit in my stomach. I spoke with Wendy, Dr. DiPottrie’s nurse practitioner. For those of you who remember he is the Dr. who did Kelly’s first surgery and Wendy was the one who helped me through the shock of everything. What I was surprised about is that this biopsy is more of a surgery. It will last 3 hours with a recovery in the hospital for 3 days. Kelly will not be happy about that. I can’t say that I am either. We will not be staying on the 4th. floor, with the nurses we have come to know and feel very comfortable with, but rather we will be going back to that horrible room 321. The room we were in for 9 days after Kelly’s diagnosis. I think talking to Wendy made alot of memories come back and again made this all so real. We will have our answer - yes or no. There will be no more wondering or waiting. While that is good, it is also very scary, very definitive. I told Dr. Jason Kelly’s oncologist, that it has to be scar tissue, we have come to far we can not go backwards we need to keep moving forward. It has taken me almost a year to recover her from all of this and she is still not where she needs to be. When Kelly is at home with us, there is a sense of safeness for me. My daughter is home with us. I play with her, I feed her, I watch her fight with her sister and we have a new “normal” that we go through daily. I don’t feel she is a sick child, she is my daughter. I guess in the back of my head I know what she has been through and what is possibly ahead of us but for the time we are at home, Kelly is safe with me. When we are at the hospital, I know she is under the best care possible from the Dr’s and nurses but it’s not home with Gary and I. I’m not sure if that makes any sense. So again I ask for your prayers for a safe surgery, but also for a negative biopsy. I did tell Wendy that her and Dr. DiPottre started all this last March with the horrible news, they can now finish it up with wonderful news of a clear biopsy. Talk about going full circle.
Ellen
Tags: biopsy